Other Information Sources

The following web sites are also good sources of information regarding Jewish genetic diseases:

General information: American College of Medical Genetics: www.acmg.net
Chicago Center for Jewish Genetic Disorders: www.jewishgeneticscenter.org
Genetic Alliance: www.geneticalliance.org
Jewish Ethics: www.jewishmedicalethics.com
Jewish Genetic Diseases of Greater Phoenix: www.jewishgeneticsphx.org
March of Dimes: www.marchofdimes.com
National Organization for Rare Disorders: www.rarediseases.org
National Society of Genetic Counselors: www.nsgc.org
Israeli National Genetic Database: www.goldenhelix.org/israeli
Genetic Testing: www.mytestingoptions.com

Bloom Syndrome: Bloom's Syndrome Foundation: www.bloomssyndrome.org

Canavan Disease: Canavan Foundation: www.canavanfoundation.org
Canavan Research Foundation: www.canavan.org
Canavan Research Illinois: www.canavanresearch.org

Cystic Fibrosis: Cystic Fibrosis Foundation: www.cff.org
Cystic Fibrosis Living: www.cfliving.com
Live For a Cure: www.livforacure.org
Cystic Fibrosis.com: www.cysticfibrosis.com

Familial Dysautonomia: Dysautonomia Foundation: www.familialdysautonomia.org
FD Hope Foundation: www.fdhope.org
Familial Dysautonomia Now Foundation: www.fdnow.org

Fanconi Anemia: Fanconi Anemia Research Fund: www.fanconi.org

Gaucher Disease: National Gaucher Foundation: www.gaucherdisease.org

Glycogen Storage Disease Type 1A: Association for Glycogen Storage Disease: www.agsdus.org
The Children's Fund for G.S.D. research: www.curegsd.org

Maple Syrup Urine Disease: MSUD Family Support Group: www.msud-support.org

Mucolipidosis Type IV: ML-IV Foundation: www.ML4.org

Niemann-Pick Disease: National Niemann-Pick Foundation: www.nnpdf.org

Tay Sachs disease: National Tay-Sachs and Allied Disease Association, Inc.: www.ntsad.org
National Tay-Sachs and Allied Disease Association of the Delaware Valley: www.tay-sachs.org