The Victor Centers in the News
Center promotes awareness, testing for diseases
Philadelphia Inquirer –
07/20/2011
Philadelphia Federation's Women of Vision Supports Victor Center Project
Jewish Exponent –
11/11/2010
Federation's Women of Vision, the Jewish Women's Foundation of Greater Philadelphia, awarded a grant to the Victor Center for the Prevention of Jewish Genetic Diseases to empower college age women become advocates for their personal health and the health of their future families. Learn about this grant and other great projects the Women of Vision supports through the attached link.
Work: Victor Center
Academy for Educational Development Press Release –
11/11/2010
The Victor Center, with a grant from the Center for Disease Control, created a social marketing campaign for college students with the guidance from the Academy for Educational Development (AED). AED summarizes this fabulous project which the Victor Center will be bringing to campuses accross the United States in upcoming months.
Discovering the Newest Jewish Genetic Disease
Jewish Forward –
08/11/2010
Enlisting Rabbis in the Push for Screening
Jewish Forward –
08/11/2010
Accessibility vs. Expertise: Direct-to-Consumer Testing Sparks Debate
Jewish Forward –
08/11/2010
$1.5 Million for Atlanta Screening
Jewish Forward –
08/11/2010
Jewish Students Receive Genetic Screenings
The Daily Free Press of Boston University –
11/19/2009
Testing Seeks to Avoid Genetic Problems
Sun Sentinel –
11/05/2009
Getting Screened: The Most Important Blog Post I’ve Ever Written
Jewish Wedding Network –
10/01/2009
Jewish Wedding Network's Sara Marcus visited the Victor Center in Philadelphia and writes about the importance of this experience.
NTSAD Tay-Sachs Carrier Screening Position Statement Is Released
National Tay-Sachs and Allied Diseases Association –
09/25/2009
The National Tay-Sachs and Allied Diseases Association recently release the position statement, Standards for Tay-Sachs Carrier Screening, to promote the most sensitive method for detecting Tay-Sachs carriers. The position statement advocates enzyme assay as the primary method for Tay-Sachs carrier screening. Over 100 mutations have been identified in the Tay-Sachs gene. DNA carrier screening only ‘looks’ for a small number of mutations common to the Ashkenazi Jewish community whereas enzyme assay testing can detect a carrier with any mutation.
The Boston Victor Center's Dr. Jodi Hoffman was instrumental in creating this statement.
Making It All 'Relative'
Jewish Exponent –
08/06/2009
Dr. Adele Schneider emphasizes the importance of understanding your family history in the linked article summarizing the International Association of Jewish Genealogical Societies conference.
National Advisory Committee Formed for Victor Centers for Jewish Genetic Diseases
Albert Einstein Healthcare Network –
05/28/2009
A National Advisory Committee has been established for the Victor Centers for Jewish Genetic Diseases which provide comprehensive genetic education, screening and counseling services for 11 genetic diseases.
Jewish Life is a Passion for this Cherry Hill Native
Jewish Community Voice of South Jersey –
05/06/2009
The Philadelphia Victor Center's Mariam Shpeen Feist was highlighted in the Jewish Community Voice for her dedication to the Jewish Community. As the Director of Major and Planned Gifts at Albert Einstein Healthcare Network, Mariam works tirelessly to spread the word about Jewish genetic diseases and ensure the future of the Victor Centers.
Add Jewish Genetic Disease Screening to Your Wedding 'To Do' List
Jewish Times of South Jersey –
04/24/2009
This article submitted by the Victor Center at Albert Einstein Medical Center in Philadelphia and published in the Jewish Times of South Jersey.
Planning your wedding can be a mixed bag of fun and stress, requiring a great deal of thought and organization. With so many logistics to manage, couples are probably not thinking about being screened for Jewish genetic diseases....
Eradicating Jewish Genetic Disorders
The Magazine of the University of Miami Leonard M. Miller School of Medicine –
03/30/2009
Lois Victor's gift to the University of Miami allowed for the establishment of Victor Center at the Miller School of Miami.
Lois Victor speaks of having two children who died of a Jewish genetic disease, and how she's made it her mission to prevent others from having to go through this experience.
Delray Woman Putting Genetic Diseases to the Test
11/18/2008
Genetic screening and fair to educate about prevalent Jewish diseases
the Shpiel –
10/09/2008
Miami experts to speak on genetic diseases affecting Ashkenazi Jews
The Gainesville Sun –
10/08/2008
Miami experts to speak on genetic diseases affecting Ashkenazi Jews
The Gainesville Sun –
10/08/2008
Jewish Press Health and Living: Jewish Genes By Dr. Daniel Eisenberg
07/01/2008
Genetic Testing being urged for Jewish Couples
Bucks County Courier Times –
05/22/2008
Newlyweds Lauren Wolkoff and Josh Nanberg knew love could survive any test, including a blood test that could determine their future family plans.
Passage of Genetics Bill Welcomed as 'Civil-Rights Milestone'
Jewish Exponent –
05/08/2008
Following more than a decade of advocacy by Hadassah and other Jewish organizations, the House and Senate have each passed a bill that would prohibit employers and health-insurance firms from discriminating against individuals based on information obtained through genetic testing.
Students Screened for Genetic Diseases Common Among Jewish Population
Haverford College Website –
05/01/2008
In 1970, there were 55 cases of Tay-Sachs Disease—a genetic disorder common among people of Ashkenazi Jewish heritage and fatal to infants—in the United States.
Symposium: What's in Your Gene Pool?
Jewish Exponent –
04/17/2008
"The Jewish community needs to be roused to action," said Adele Schneider, director of Clinical Genetics, Albert Einstein Medical Center, at a recent symposium.
Symposium stresses urgency of genetic screening for Jews
Jewish Community Voice –
04/09/2008
They gathered to consider one of the most urgent issues facing Jews, an issue too little known, understood and examined.
A Difficult Diagnosis
Main Line Life –
04/08/2008
It was a normal pregnancy and a normal birth with the joyful expectation that the newest Sonenshein baby, a boy this time, would thrive just as his three year old sister Emily had.
Film Producer Gladstein Addresses Bloom's Disease Testing
The Bulletin –
04/01/2008
Philadelphia - There is a kind of "Neverland" that Richard Gladstein, that film's producer, entered when his son Milo was born seven years ago. Mr. Gladstein, who has had a long and luminous career as a Hollywood film producer, with movies like "Pulp Fiction" "Cider House Rules" and "The Bourne Identity" to his credit, could not have predicted the crisis that would follow his son's birth with a disease called Bloom's Syndrome.
Einstein Takes the Lead in Preventing Jewish Genetic Diseases
03/10/2008
Lois Victor: A Guiding Light for Genetic Testing Availability
South Florida Hospital News –
03/01/2008
Lois Victor, the Founder of the Victor Center for Jewish Genetic Diseases, was recently honored by the Mathew Forbes Romer Foundation for her work in genetic disease education and testing.
The Victor Voice Newsletter, March, 2008
Albert Einstein Healthcare Network Website –
03/01/2008
PDF Newsletter
Philanthropist Puts Genetic Diseases to The Test
Jewish Daily Forward –
08/22/2007
As someone who has lost two daughters to familial dysautonomia, Lois Victor knows all too well the pain that can be wrought by genetic disease.
Campuses Offer Genetic Tests (No Studying Required)
Jewish Daily Forward –
08/22/2007
At the Pennsylvania summer camp where she was working as a counselor, Shoshana Rosen got tested for nine Jewish genetic diseases and found out she was a carrier of cystic fibrosis.
